Archive for June, 2011

Matt Lewis needs our help

Tuesday, June 28th, 2011

 

My friend Matt Lewis has spent the last two weeks in the hospital and was recently diagnosed with PNH. It’s a very rare blood disease (1-2 cases annually per million) and has necessitated him receiving regular blood transfusions. He will be placed on the world’s most expensive drug to managed the condition but will eventually need a bone marrow transplant.

What you can do to help:

  • Donate blood You can give an offset blood donation at a facility local to you. Just tell them it’s for Matt Lewis 11/4/1979 Kaiser Permanente Hospital in Los Angeles.
  • Be the match A bone marrow transplant is the only way to cure PNH and it can be very difficult to find a match—a sibling has a 30% chance of being a match. By signing up for the National Marrow Donor Program, you have the chance of helping Matt or saving the life of someone in a similar situation. Once signed up, they send you a cheek swab kit to complete your registration. The more people we register, the greater the odds for everyone.

Thank you for taking the time to read this and I hope you consider giving.

You can watch the web series Video Game Reunion that Matt created/directed on Atom.

Aside: The photo above was taken by Erin right before Matt and I completed a SRS BZNS deal at Ninja Penguin 4.

Update: Regular updates on barkode’s condition are being posted here.